GOOD NEWS

I told you once before that I like the hematology doctors...they are always smiling but the best part is they always have good news and are always optimistic. This morning one of the hematologists that was at the round table meeting yesterday came by. She said that they are not going to go ahead with chemotherapy. Although her bilirubin levels are high they said they have seen children with higher levels and they were ok. The conjugated bilirubin is not as harmful at high levels as the unconjugated...the latter can cause brain damage. We learn something new everyday. The hematologists convinced the GI team that Kaitlyn will be ok, that her liver is working fine and that the side effects of chemo outway any benefit at this point. This is such good news because since the doctor mentioned it we have not been given an definitive plan, leaving us hanging in a limbo. Thank you for everyones prayers. We know that our family is covered by an amazing family and community.

Kaitlyn is stable. The nurse put some jammies on her and is modifying a soother. Kaitlyn is off morphine and seems relatively comfortable. This also means she is more alert so we get to see her beautiful eyes.

The plan is to take the breathing tube out first thing tomorrow morning. She has been on steroids to reduce swelling and give her the best possible fighting chance. I really believe it's going to come down to God coming through for her. Please keep her in your prayers today because it will happen first thing tomorrow morning at about 7am or 7.30am.

Gotta keep this short as it's Lauryn birthday today and we want to leave the hospital early to spend time with her on her special day.

Some people have not been able to wait for this chapter and have been calling...thank you for your love and concern...to everyone, your calls are not a bother...we appreciate everyone's support!